It sucks being the individual in this process. The only real solution is to develop better models for understanding what's going on so that we can come up with objective criteria and testing.
To an external observer, there is no difference between someone who has a very low pain threshold and experiences normal body wear as extremely painful, and someone who has some mechanical condition causing pain.
> but endometriosis seems to be particularly bad.
I've known people who had endometriosis successfully treated after a long struggle to get someone to believe them.
And I've known someone who after a long struggle to convince someone to believe them, finally found someone. Then underwent extremely invasive and expensive surgery with no improvements.
It's an extremely difficult issue and it sucks for everyone involved.
To an external observer, there is no difference between someone who has a very low pain threshold and experiences normal body wear as extremely painful, and someone who has some mechanical condition causing pain.
> but endometriosis seems to be particularly bad.
I've known people who had endometriosis successfully treated after a long struggle to get someone to believe them.
And I've known someone who after a long struggle to convince someone to believe them, finally found someone. Then underwent extremely invasive and expensive surgery with no improvements.
It's an extremely difficult issue and it sucks for everyone involved.